Author Archives: The Brain Tumor Foundation for Children

Dear Sophia, Knock-Knock. Who’s There? Chair. Chair Who? Aren’t you glad I didn’t say banana again?? Remember how you loved to tell knock-knock jokes? You would look around the room, trying to quickly figure out something to say for who … Continue reading →

Nathan was diagnosed in February 2010 with a desmoplastic infantile ganglioglioma, just five months after his father, Mike, had been diagnosed with bladder cancer.  After a few months in Nashville, at Vanderbilt, Mike and I moved Nathan’s care to Duke … Continue reading →

In 2007, Taylor’s life was changed by the diagnosis of an inoperable tumor in her brain stem – glioblastoma.  Eight years old at the time, we had no idea what her future would hold.   She is no longer able to … Continue reading →

It was a wonderful time in our lives.  My husband Kevin had returned home from a year in Iraq and was about to be promoted.  My sons – Chase and Wesley – were doing great and Sarah, our daughter, was … Continue reading →

When I sit and think over my life, I stop and say, “It’s been a long, long journey and I’m still here.”               Life has been great to me and all thanks goes to the power of God.  I started my … Continue reading →

My name is Kelby.  At the age of six, in 1979, my body was struck by cancer.  I was diagnosed with medulloblastoma – a brain cancer.  I was given a 2% chance to live.  Doctors said if I lived through … Continue reading →

Savannah was diagnosed with brain cancer on August 14, 2006, but that is not where her story begins. In March 2005 she was diagnosed with Diabetes Insipidus (DI); a disorder caused by the brain not sending signals to the pituitary … Continue reading →

Shelby was born March 30, 2006 and was by all accounts a typical baby except for a light case of lazy eye that we were told she would most likely outgrow before we needed to intervene.  She met all her … Continue reading →

Peyton was diagnosed on September 15, 2010 with a Diffuse Intrinsic Pontine Glioma.  It started when Peyton’s left eye crossed overnight.  I had noticed a couple of days before that his eyes were crossing periodically.  My thoughts were, “he figured out … Continue reading →

Our daughter, Morgan, was born on May 14, 1991.  She was a beautiful baby and the joy of our life.  Around the age of nine months, she began to have these “episodes”.  We couldn’t imagine what was going on.  She … Continue reading →