It all started with a few headaches now and again. Izaac would complain of headaches a few times a month, especially after school. I took him to his pediatrician on several occasions and we would just treat the headaches with Ibuprofen and Tylenol. During this time Izaac was a happy-go-lucky kid with a passion for baseball. If he wasn’t playing baseball, he was watching baseball, if he wasn’t watching, he was playing baseball video games. During several of his baseball games, he started vomiting. We assumed it was due to the heat or just ate a little too much before the game. On May 13 2011, around 5:30 am, Izaac came into my room screaming and crying in pain, and then the vomiting started. We headed to his doctor as soon as it opened, she ordered an MRI for that following Monday.
During the MRI Izaac had an allergic reaction the MRI Contrast and had to be rushed to the ER where he was put on IV fluids and lots of medications. We were in the ER for several hours, once he was stable, we got the news. Izaac was diagnosed with a craniopharyngioma, (a benign tumor near the pituitary gland) from that day our whole world was flipped upside down. This is a slow growing tumor, but due to its location and the many complications that it can cause, it is treated as if it was malignant. Over the next few months we drove hundreds of miles and met with many doctors, a few said to wait and watch the growth of the tumor, and some said aggressive surgery was needed now. My sister-in-law, who shared my son’s story, had a friend who led us to St. Judes in Memphis TN. It was there that we learned of a clinical trial being opened for this exact tumor and that my son Izaac would be the first one on the trial list. Luck you say? Nope. A gift from GOD!
Izaac had one surgery to drain the tumor and insert an Ommaya Catheter. After many lab tests, MRI’s, Cat scans, Bone Density tests, PET scans, Cognitive tests, hearing tests and eye screenings we were headed to Florida (we live in Texas) for six weeks of proton beam therapy. Izaac received all 30 days of treatment and never missed a beat. He joined the local Florida Fall Ball Baseball team and played three games a week, including treatment days. He is a fighter and the strongest person I know, I have learnt so much from him.
We are seven months post treatment and Izaac’s tumor is considered stable. We have quarterly visits to St. Judes for MRI’s and other tests. We will continue to watch this tumor and pray for no growth. I thank the Lord that I get to wake up with my beautiful son every morning, that we get to continue to watch him play his favorite sports. I continue to pray for a treatment for these nasty tumors and that one day NO child will have to go through this.