This post is part of a series of testimonials from families who have benefited from BTFC’s Butterfly Fund, which generously assists families in financial crisis as a result of a child’s diagnosis of a brain or spinal cord tumor. The Butterfly Fund meets immediate, specific needs for families so that they can concentrate on caring for their child. This post was guest written by 4-year-old Calla’s mother, Shanda Kennedy.
When our daughter was inpatient, there were about a bazillion things on our minds. How could this terrible thing be happening to our precious little girl? When will she get to go home? Will she even go home ever? Surgeries, PICU, blood draws, MRIs, CTs, lumbar punctures, chemotherapy, radiation, hair loss, rehab therapies … we were so blessed to benefit from the Butterfly Fund. At least we weren’t concerned about how we were going to pay our phone bill!